Reposted with permission from AlzAuthors.com
By Bobbi Carducci
Caregivers very often become isolated as the needs of the one-in-care progress. Even well-intentioned family and friends begin to drift away, leaving caregivers wondering if anyone understands what their life has become.
I know that feeling very well. A caregiver for my father-in-law, Rodger, for seven years, I often felt as if the rest of the world had moved on to work and family life, believing my days were easy.
Some questioned how hard could it be to stay at home and cook his meals and take him to the doctor now and then. Surely I exaggerated the difficulty.
Worse was when I doubted myself. Was I the only one who questioned whether my loved one was faking sometimes? Or wondered why someone I cared about and rearranged my life for was suddenly treating me as the enemy? Did anyone else get angry and lose their temper or was that a character flaw unique to me?
Toward the end, after weeks of little sleep and constant stress, when I prayed for it to be over, I questioned my humanity. I didn’t want him to die. I wanted the pain to end. But still, was I the only one holding that silent wish in their heart?
After speaking with caregivers and interacting with them as caregiver support group leader, and through online groups and as a speaker at caregiver conferences, I heard many caregivers express the same doubts and fears inspiring me to write my second book for caregivers.
Caregiver –You Are Not Alone is an anthology of caregiver stories representing varying ages, genders, and family dynamics all doing the hardest job they ever had to do. Although they may be slightly different from our personal experience, they are our stories too.
Each story is followed by an essay reflecting on my personal experience and feelings while caring for Rodger, when I felt very much alone.
Bobbi Carducci is a national speaker on the subject of Alzheimer’s and dementia, how it affects entire families and how to Prepare to Care – What Adults need to Know about Alzheimer’s/ Dementia Before and After It Strikes Home.
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