Alzheimer's Daughter

The Story

Alzheimer’s Daughter introduces the reader to my healthy parents, Ed and Ibby, years before their diagnosis, then recounts painful details as our roles reversed and I became my parents’ parent.


Their disease started as translucent, confused thoughts and ended in a locked memory care unit after a near decade of descent into the opaque world of Alzheimer's.

I began writing Alzheimer’s Daughter one week after my mother's death––when I was stunned, realizing Dad had no memory of her or their 66-year marriage.

I write to pay tribute to the undying spirit at Ed and Ibby's core, and with the hope that the story of their parallel decline might be helpful to others.

Wednesday, January 5, 2022

Anthony Copeland-Parker and Partner Catherine Become Marathon Nomads

 

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I encounter Anthony Copeland-Parker's book through shared Alzheimer's and dementia tribes on social media. 


He and his partner, Catherine, write an amazingly inspiring travel memoir, Running All Over the World; Our Race Against Early-Onset Alzheimer's, in which they detail their life as marathoning nomads despite life-altering diagnoses which would sideline most people to the security of their home and an easy chair. Instead, they decide to push every boundary and live a life beyond full... to overflowing.


Anthony writes:

Just like the attitude Catherine takes towards running a marathon, she takes when it comes to her diagnosis of Early Onset Alzheimer’s. She just puts her head down, puts one foot in front of the other, and never gives up. Catherine’s resilience or reserve is anything athletic, so we combine that with our love of travel. Catherine has completed 83 marathons, one Iron Man Competition, a 50 miler Ultra Marathon and many races and triathlons of various distances.

During our years as nomads, we've pushed our physical and mental limitations as often as we could - and we finished every race hand in hand.


Read the entire post:

https://alzauthors.com/2022/01/04/anthony-copeland-parker-running-world/


Wednesday, December 15, 2021

LaBena Fleming writes "Caregiver to Caregiver: a Scripture-Focused Guided Reflection Journal."

LaBena Fleming's first book, I Love You Always, One Family’s Alzheimer’s/Dementia Journey and the Lessons Learned Along the Way, details her journey as her mom's devoted caregiver. Now in her second book, LaBena lends more support to caregivers by publishing Caregiver to Caregiver, A Scripture-Focused, Guided Reflection Journal in hopes that hurried caregivers will take time for reflection and renewal of the spirit.


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LaBena shares:

I feel my book is beneficial to others because I encourage them to do many of the things caregivers either don’t think to do, forget to do, or don’t think they have time to do. I encourage them to think through, experience, and write their feelings in this journal without fear of guilt, shame, or judgment. I guide them in planning to do the difficult things because those things are not going away. Most importantly, I encourage them to be kind to themselves and to look for blessings amid the pain.


Read the entire post on AlzAuthors:

https://alzauthors.com/2021/12/14/labena-fleming-c…ver-to-caregiver/ 

Rayna Neises, author of No Regrets: Hope for Your Caregiving Season

My heart was touched as I read Rayna Neises' memoir/caregiver guide, No Regrets; Hope for Your Caregiving Season. She allowed her book to be posted with AlzAuthors at the end of November. 

Although Rayna lived 200 miles from her dad, she and her family devised a nearly impossible plan to provide 24-hour care while keeping her father in his own home. Read Rayna's book and be inspired, knowing you are not alone in your journey.

Rayna writes:

After burying my dad in 2018 I reflected on the season of caring for him in his home with family members, paid caregivers and myself providing 24-hour care for the last 4.5 years of his life and realized I was honored, proud and thankful that I walked him all the way home, still lived a life that I loved, and had no regrets.





Read the entire post: https://alzauthors.com/2021/11/23/rayna-neises-caregiver-guide-no-regrets/

Wednesday, November 10, 2021

Meet Laurette Klier, author of Nana’s Books; Sit With Me At Sundown, and Other Nostalgic Picture and Literature Books for Seniors










A few months ago I had the pleasure of meeting Laurette Klier and discovering her wonderful book series called Nana’s Books. One example is Sit With Me At Sundown, Nostalgic Poetry for the Young at Heart. The series includes over a dozen other nostalgic picture and literature books for seniors. These books would be an excellent addition to any senior living community, adult day care setting, and any home in which an elder is being cared for.


Laurette states:

Confounded by the lack of quality reading materials at my mother-in-law’s long-term care facility, I scoured the internet for something stimulating and enjoyable to share with her on visits. It had become increasingly difficult to engage ‘Nana’ who was living with Lewy Body dementia.

A lifelong reader of the Boston Globe and an avid bridge player, word searches and coloring books fell flat with Nana.

Determined to find something to bring in a little joy, and to spark a conversation, I decided to try my hand at creating books of my own...I completed Sit with Me at Sundown, Nostalgic Poetry for the Young at Heart (Life’s Journeys) in a few weeks and was thrilled with the book. So was Nana and the people who lived in her memory care unit.



Read Laurette's featured post on AlzAuthors by clicking the link below: 

https://alzauthors.com/2021/11/09/alzauthors-com-2021-11-10-laurette-klier/


Thursday, October 28, 2021

You'll Laugh and Cry When You Read Ellen Rittberg's Humorous Caregiver Guide: Why Is Grandma Naked?

 Dear Friends,


This week on AlzAuthors.com, elder law attorney, Ellen Rittberg, shares her humorous caregiver guide: Why Is Grandma Naked?


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Ellen writes:

I discovered that there were next-to-no humorous how-to books for caregivers whose parents have dementia, which led to my writing Why is Grandma Naked? Caring for Your Aging Parent. It’s my hope that by sharing what worked for me, the book can help other caregivers and lighten their load, so to speak... What I didn’t understand until after the fact was that being a caregiver for a beloved parent with dementia is like dementia: it‘s irreversible and life-transforming. And whenever I think of Mom, I still smile.



Read the entire post: 

https://alzauthors.com/2021/10/26/ellen-rittberg-why-is-grandma-naked/


Wednesday, September 1, 2021

AlzAuthor, Alex Winstanley, Creates Children’s Book "My Grandma Has Dementia" From Personal Experience

About a year ago, I became acquainted with this delightful children's book by Alex Winstanley, My Grandma Has Dementia. Alex wrote this book based on his own experiences with his grandma. When reaching out to him, he was thrilled to write a post for AlzAuthors.com. I've had the pleasure to speak with him via Zoom. I'd describe him as a heartfelt dynamo. He is creating a series of books to help children understand health conditions as diverse as depression, cerebral palsy and cancer. This book is a must-read for any family needing a resource to explain changes that may be happening with a beloved grandparent.

 

Alex writes:
"This book, and the book series, exists to start the conversation for children and young people about health conditions that are often treated as a taboo subject. As a former teacher, I think it is imperative that children and young people start these conversations from as young an age as possible."


 

Read the entire post here!


Wednesday, August 18, 2021

Read Granny Needs My Help, by Deborah Mills, to Assist Children Struggling to Understand Alzheimer’s

Granny Needs My Help by Deborah L. Mills is a beautiful, touching book for children. I feel so lucky to have connected with this author through AlzAuthors.com.

Please read this book with a child who is wondering about changes in a grandparent. This is such a gentle and positive explanation of the Alzheimer's process.


Deborah writes:

Dementia and Alzheimer’s are not easy subjects to talk about because of the stigma and embarrassment society tries to attach to them. It makes this book that much more of a must read. Let this book spark conversation. Through fun full-color illustrations and a heartfelt child friendly story Granny Needs My Help: A Child’s Look at Dementia and Alzheimer’s helps bridge the gap between child and adult.
 

Read the entire post on AlzAuthors now!