Alzheimer's Daughter

The Story

Alzheimer’s Daughter introduces the reader to my healthy parents, Ed and Ibby, years before their diagnosis, then recounts painful details as our roles reversed and I became my parents’ parent.


Their disease started as translucent, confused thoughts and ended in a locked memory care unit after a near decade of descent into the opaque world of Alzheimer's.

I began writing Alzheimer’s Daughter one week after my mother's death––when I was stunned, realizing Dad had no memory of her or their 66-year marriage.

I write to pay tribute to the undying spirit at Ed and Ibby's core, and with the hope that the story of their parallel decline might be helpful to others.

Wednesday, November 25, 2020

Kathy Flora Writes a New Memoir About Caring for Her Mother Called "Walking Momma Home"

While searching the top 100 books in Alzheimer's on Amazon recently, I found Kathy Flora, author of Walking My Momma Home: Finding Love, Grace and Acceptance Through the Labyrinth of Dementia.

I reached out to Kathy and she agreed to write a post for AlzAuthors. During our conversations, I learned more about her story. What stands out in my mind is that while recovering from illness, working full time, and balancing her own family life, Kathy completed a series of moves for her mother's well-being and eventually found peace in their journey. She shares her story with you.


Kathy writes: 

Walking My Momma Home is a memoir of my mom and me. It is about love, hope, uncertainty, role reversal, courage, and the raw humanity in Mom’s experience of losing herself to this disease. And it is about the hard decisions, conflicts, relationship balancing, and soul-stretching that being her caregiver required. Our story is one of love and laughter, tears and terrors, of opening hearts, and deep emotional healing. Finally, it is a story of God’s loving patience as He guided me to grow into the woman He intends me to be through caring for my mom.


Please read the entire post here.


Tuesday, October 27, 2020

Robin Thomson Writes About Caregiving for His Wife in His New Memoir, Living With Alzheimer's: A Love Story,

 I was drawn to Living With Alzheimer's:  A Love Story by its beautiful cover. Robin Thompson, the author, agreed to write a featured post for AlzAuthors. This book is well worth the read if you are a spouse caregiver. 


 

Robin shares: 

I wanted to tell our story as openly and honestly as possible, hoping that it could be helpful to other caregivers, families and friends, sharing the same pain and pressure, as well as the hope and resources. It’s difficult to convey the sense of bewilderment and sometimes hopelessness that you feel when caring for a person living with Alzheimer's, without appearing negative or self-pitying. But on the other side, the most remarkable thing for me was my experience of Shoko’s love and affection, even when her understanding was becoming more and more confused.

Please read the entire post here.

Wednesday, October 14, 2020

Family Doctor, Sally Willard Burbank, Cowrites The Alzheimer's Disease Caregiver's Handbook, with Sue Pace Bell, a Spouse-Caregiver

Even though it's been a decade since my parents died of Alzheimer's, I still have a thirst to read about the disease and its impact on loved ones. Each time I reach out to an author, I feel like I make a new friend; someone who understands. I come to know someone who has shared some part of my journey. AlzAuthors.com was built from that desire. 

I found this beautiful book floating in the top 100 on Amazon. Wow, it's worth the read! A family doctor writes this helpful book chapter by chapter with the wife of an Alzheimer's patient. We see the medical side and the spouse-caregiver perspective. Very unique! So, this week AlzAuthors welcomes Dr. Sally Willard Burbank, author of  The Alzheimer's Disease Caregiver's Handbook; What to Remember When They Forget.

 


 

Sally shares: 

As a primary care internist with thirty years of experience, I noticed that, hands down, THE most stressed out and worn-out patients in my practice were those who were caregiving parents or spouses with dementia or Alzheimer’s disease. They came in sleep-deprived and overwhelmed, always second-guessing themselves for how they were handling things. Some had come to near blows with siblings on thorny decisions. They are usually racked with guilt because they lose their patience with their loved one when they don’t remember what they are told or repeat the same question or story over and over the again.

Please read the entire post here.
 

Wednesday, September 30, 2020

Dawn Gardner Writes About Finding Peace in a Tumultuous Mother Daughter Relationship in Her New Novel, The Jade Butterfly

I found this book recently in the top 100 in Amazon within the category of Alzheimer's. In reaching out to the author, Dawn Gardner, she agreed to write a post for AlzAuthors about her new novelThe Jade Butterfly.


 

Dawn shares: 
There are so many levels to caregiving. I think a lot of people will identify with Ellen in the novel. Ellen doesn’t believe she knows how to be a caregiver. And she certainly doesn’t think that she will be good at it. Caregiving is just two words: care and giving. Ellen learns her own way to care for her mother, discovers the life her mother lived before the disease and finds herself, after years of unhappiness.

Please read the entire post here.
 

Wednesday, September 16, 2020

In Her New Memoir, Dementia from the Inside, Dr. Jennifer Bute Reveals Her Personal Journey of Hope

I been honored to connect with the remarkable Dr. Jennifer Bute, former Family Practice Doctor from the UK and learn about her beautiful memoirDementia from the Inside, A Doctor's Personal Journey of Hope. 

Jennifer shares: 

I passionately believe we can really improve things for those living with dementia. When I was diagnosed 10 years ago, I had been a medical doctor and involved in medical education but had to take early retirement because of my diagnosis. I had no help and no support apart from a diagnosis. So I set about working out principles for myself which I have found apply to everyone no matter what type of dementia. 

Please read the entire post here.

Her book gives so much hope. The key points I remember from the book are that a diagnosis does not end one's life, but changes it. Those living with memory impairment can still find much joy and beauty if they can retain their positive attitude. She teaches strategies for doing exactly that.  
 

Wednesday, August 26, 2020

Liz O'Donnell Connects With All Working Daughters Who Are Caregivers Through Her New Book

I search the top 100 books in Alzheimer's and Eldercare every day. 

The stunning cover of Working Daughter caught my eye recently. I reached out to Liz O'Donnell and read her book, cover to cover. Wow, she hits the nail on the head as she speaks honestly about the challenges of caregiving for an elder family member, (in her case, both parents) while trying to do it all, staying afloat in her own family life and her career.

This week AlzAuthors.com is pleased to welcome Liz O'Donnell, who shares her book, Working Daughter.

 

 

Liz writes:

On July 1, 2014, both of my parents were diagnosed with terminal illnesses. My father had been acting forgetful and confused and he had been in the hospital for ten days while they evaluated him. That day, I had a meeting with his care team and they told me he had Alzheimer’s and dementia, that he could no longer live at home, and that I had a week to place him in a memory care facility. I left the meeting – reeling – and before I even exited the hospital parking lot, my cell phone rang. It was a doctor at another nearby hospital. A few days earlier my mother had been sent there with stomach pains. That doctor told me mother had ovarian cancer and asked me if I could come right away, so we could tell her the news together.

Please read her entire post here.


Wednesday, August 12, 2020

New Children's Book, The Story of Mrs. Inez, by Madeline Wolfe

If a child in your life needs a gentle explanation of Alzheimer's, please check out Madeline Wolfe's delightful children's book The Story of Mrs. Inez.

Madeline shares:

The character of Mrs. Inez is loosely based on my grandmother’s former roommate, who I met at a nursing home around five years ago. This book is a tribute to her, my own late grandmother, and anyone else who can no longer tell their story.

 

Please read the entire post from AlzAuthors.com here.