Alzheimer's Daughter

The Story

Alzheimer’s Daughter introduces the reader to my healthy parents, Ed and Ibby, years before their diagnosis, then recounts painful details as our roles reversed and I became my parents’ parent.


Their disease started as translucent, confused thoughts and ended in a locked memory care unit after a near decade of descent into the opaque world of Alzheimer's.

I began writing Alzheimer’s Daughter one week after my mother's death––when I was stunned, realizing Dad had no memory of her or their 66-year marriage.

I write to pay tribute to the undying spirit at Ed and Ibby's core, and with the hope that the story of their parallel decline might be helpful to others.

Wednesday, June 27, 2018

Meet Mary Edwards-Olson author of "When the Sun Shines Through"

Republished with permission from AlzAuthors.com


By Mary Edwards-Olson

I wrote, When the Sun Shines Through, because of my personal journey. I was a caregiver for my mother and watched first hand as Alzheimer's slowly stole her from us.

My mother, Elizabeth Edwards, lost her fight with Alzheimer's on October 23, 2017.

Caring for my mother was a roller coaster of emotions. You go from crying so hard that every inch of your body aches, to being so overwhelmed with joy when a piece of them peeks through the mask of Alzheimer's. I was ignorant to this disease and its cruelty until I watched it slowly take my mother, piece by piece. It was hard as a caretaker to understand that Mom wasn't Mom anymore in terms of behavior. There were days I thought she was being lazy or difficult on purpose and I would get so upset. It breaks my heart I ever thought that. It was the disease, in those moments. Please remember it's the disease. Your loved one is in there, scared and confused. Show compassion and remember to take time for yourself. As a caregiver, we often take a back seat, but remember your loved one needs you to be happy, and emotionally and physically healthy. They may not express it but they understand.

This never-ending pain pushed me to write a book that leads you towards the light, towards the happiness that can often be overlooked because the sadness and darkness will consume you. This was what happened to me; I was so sad ~ the type of sadness that changes a person. Because of this sadness, I often missed those happy moments that seem to shine through. The moments when your loved one remembers you or a childhood event, or when they smile, or remember to tell you they love you. Hold on to that. Let that consume you. Do not focus on the horror of slowly losing your hero or best friend; that was Mom to me, she was my hero and my best friend. The strongest women I knew was fading. 

I also witnessed the toll watching a loved one suffer from this disease had on my children. They weren't just watching their Nana suffer, they were watching their mother break down begging God for a miracle. They were also watching their grandpa become more and more withdrawn, forcing smiles and happiness. I knew there needed to be a book that could help the often forgotten sufferers, the children, but also offer comfort to the adults. Thus, When the Sun Shines Through was born.

Everyone who has purchased the book from me has left with tears in their eyes or a smile on their face. Both children and adults have found peace and comfort in my book. Others have written me or left positive feedback saying my book tells such a painful story in such a sweet comforting way. The words along with the beautiful illustrations remind them to hold on to the good memories they steal from a disease that tries to do nothing but cause heartbreak. It currently has a 4-star rating on Amazon and was on their hot new release list and a top seller on Kindle. 

Because of this book I have been able to partner with our local Barnes and Noble to turn the store purple and raise over $2,000 to help find a cure. The Elizabeth Edwards Grant For Hopewas created to help those in our community that can't afford care or supplies needed to maintain a healthy happy life. We had our first event where we raised almost $5,000! The wonderful part was bringing those with the disease together with the community, those that are caregivers, and those that have lost someone they love under one roof. We gave Alzheimer's a face! 


Bio:
My name is Mary Edwards-Olson. I'm a writer, a mother, a daughter, a wife. I wake up every day wanting to give up and crawl into a hole, but my drive to find a cure overpowers this emotion. I fight and I refuse to stop! I talk constantly about my journey, the need for a cure, and the pain the hopeless carry. I am a voice and I refuse to be silenced! This is my first book. I have another being illustrated now along with a novel I'm working on as we speak. I have been a guest speaker at many local events and hope to spread my message far beyond my community. Thank you to all of you that fight to end this horrible disease!

Links:




Twitter: @authorMEOlson

Video of Journey: https://vimeo.com/243444581

Wednesday, June 20, 2018

Meet Anne F. Balcolm, Whose Blog Became the Book — The Blue Velvet Drape: Dealing With Dementia

Republished with permission from AlzAuthors.com


Mom was diagnosed with dementia in 2006. From the moment my parents told my sister and me the news I began losing sleep, a lot of sleep. The worry of “How were we going to get through this?” was eating me up. I would lie in bed at night for hours thinking and crying while my husband and kids were sleeping.

After many sleepless nights, I began getting out of bed in the middle of the night, going to the living room and jotting down my thoughts in a journal. I had so many thoughts and concerns that I could not write as fast as my thoughts were coming, so I began to type them. I would print out what I typed and tape it into my journal.

After a while I began wondering if other people who were co-caregivers of family members with dementia were feeling the same as me. I had so many emotions…fear, worry, anger, frustration, and I wrote about it all. ALL of the ugly stuff.

I decided to create a blog. I didn’t really care if anyone read it or not, but I thought it would be a good way to keep family and friends of family current with Mom’s condition, so Dad, my sister and I wouldn’t have to keep retelling what was going on. This is how Dealing with Dementia was born. After Mom passed away, I changed the name to The Blue Velvet Drape: Dealing with Dementia. It truly is my journal.

For years, my father, aunt and I attended monthly support group meetings for family members caring for loved ones with dementia. At one of those meetings, Dad mentioned that I had started keeping a blog of our dementia experiences. The moderator of our support group asked for the link, so she and others could read it.

Months went by, and after she had read my blog she encouraged me to keep writing as she felt it was a good resource for others who were also caregivers. Later she encouraged me to publish my blog. “Oh my gosh”, I thought. “Who would want to buy a book about my family?” I am not a writer by any means; my blog is full of misspelled words and grammatical errors. Regardless, people kept reading, relating and encouraging me about the book. Eventually, my blog reached more than 20,000 views across 12 different countries.

It was 9-10 years before I actually bit the bullet and self-published a book in February 2017. My book IS my blog. It isn’t perfect by any means, but it’s mine and my family’s experience.

My hope for my book is that it is helpful to others. Don’t be afraid to ask for help. You cannot do it alone.

Blog Feedback

When thinking of closing my blog after Mom passed away:

Anne,
Take it for someone who has been in your shoes, writing might be the exact thing you need right now. I found it very therapeutic after my father died. Once a caregiver, always a caregiver; your journey is not over yet. You will find that this campaign will stick with you for quite a while. Write about the after affects you go through, it’s important that others learn from your experiences. There’s a course of recovery that every caregiver should know about.
Stay strong my friend and share your wisdom with others,
-Gary Joseph LeBlanc

***

I have referred a friend of mine to your blog two weeks ago. She needed a source to learn how to deal with things. I’m glad you are keeping this blog. Even though I haven’t dealt with this, it’s still therapeutic in other ways. –Amy

***

Don’t close it, Anne…you may need to come back to it someday and it may be that you will want to share this with your children. And like you said, you aren’t finished…take it slow and don’t rush anything right now…I have enjoyed it, although I never commented. I learned a lot, and I appreciate you and how wonderful a daughter you were to your mother. What an inspiration you are. Loving you Anne!

-Kim

Feedback on Amazon

A wonderful book of the daily trials that families face when dealing with dementia. Book offers insight/guidance on how to deal with situations. A must read!

-arrky66

About the Author: 

Anne F. Balcom was born and raised in Louisville, KY. She attended Western Kentucky University from 1984-1988. While she did not graduate from WKU, she later attended the Interior Design Institute at Sullivan College in Louisville getting her Associates of Applied Science degree in Interior Design in 1997. In 2000, she married David, the love of her life. They began growing their family in 2001 with the birth of their daughter, Emma. Their son, Wade came along in 2003. A stay-at-home mom for 12 years, she returned to the fulltime work force in 2013 working for Jefferson County Public Schools as an attendance clerk in an elementary school. In her spare time, she enjoys spending time with her family and friends as well as watching her daughter play soccer and her son run cross country. She has recently started taking painting classes at a locally owned art studio.

Social Media

Facebook: @TheBlueVelvetDrapeDealingWithDementia

Instagram: dealingwithdementiablog

Twitter: @Dementiasucks07

Wednesday, June 13, 2018

Meet Lisa Wingate, author of “Tending Roses”

Reposted with permission from AlzAuthors.com

By Lisa Wingate

In every story I write, there are bits of real life, nibblets of sheer invention and sprinkles of serendipity. Readers often ask me which parts are which. Sometimes, it’s hard to dissect. Our way of looking at the world comes from our experiences in it. Our passions, the things we care about enough to examine, do as well.

I’ve talked about caretaking and the Alzheimer’s journey quite a bit in my books. It’s an issue I know intimately. My first novel, Tending Roses, was in part walking that path with my grandmother.
She was a storyteller, a keeper of stories. She could wear you out with her stories, but they always came with a lesson at the end. And then, the stories, one-by-one, piece-by-piece, faded away. The newest ones vanished first. It’s a bittersweet journey, the road of memory loss. My straight-laced, sometimes overbearing grandmother lost some of her inhibitions as she lost those stories. There were funny times, tender times, funny things she said that made us laugh until we cried.

There were times we just cried. When laughter seemed an impossible luxury.

It’s difficult, being with a loved one who is physically able but fading mentally. It’s often a lonely occupation, a painful one. Even friends and family members who would like to help frequently don’t know how to contribute. My hope is that my stories build bridges and create dialogue between primary caretakers and surrounding friends and family members. Just a few hours out of the house, while a friend or family member takes over the duties, can be an incredible gift.

There’s something to learn from the journey of memory loss, I think. Just like my grandmother’s stories, all journeys come with lessons. Preserve the family stories while you can—that’s the first lesson. Listen. Hear. Record. Write down. Be patient. These are treasures. They’re worth your effort. Later, you’ll be glad you took the time. I could fill a dozen shoeboxes if I had a nickel for every time a reader has said to me, I wish we’d gotten the stories down when we had the chance. Now it’s too late.

Those are the saddest words. I hate those words.

Another lesson from the Alzheimer’s journey — it’s hard. Most of us go through life watching heroic acts on the news and wondering if we’d have what it takes to do the right thing, to do the hard thing. To be heroic ourselves. It’s important to remember that true heroism doesn’t manifest itself only in those who run into burning buildings or cross battlefields to save the wounded. Heroism exists in quieter forms, in entirely unremarkable places, in everyday efforts and little battles. It’s found in those who sacrifice day after day, who love someone who can’t always demonstrate love in return. Someone who can be frustrating, frustrated, sad, confused, unfamiliar, repetitive. Who can’t say, I love you. Thank you for doing this for me.

Don’t leave me.

I need you.

Caretakers are heroes. Straight up. They stand in the gap between this disease and its victims.

I look forward to the day when they’ll no longer be needed.

Copyright 2018 Wingate Media, LLC

About the Author

 Lisa Wingate is a former journalist, inspirational speaker, and New York Times Bestselling Author of thirty novels. Her work has won or been nominated for many awards, including the Pat Conroy Southern Book Prize, the Oklahoma Book Award, The Carol Award, and the Christy Award. Her blockbuster hit, Before We Were Yours remained on the New York Times Bestseller List for over ten months, was Publishers Weekly’s #3 longest running bestseller of 2017, and was voted by readers as the 2017 Goodreads Choice Award winner for historical fiction. Before We Were Yours has been a book club favorite worldwide and to date has sold over one million copies.

Tuesday, June 12, 2018

Alzheimer's Daughter made it to the Best Alzheimer's Books of All Time

BookAuthority Best Alzheimer's Books of All Time
"Alzheimer's Daughter", was named number five in BookAuthority's Best Alzheimer's Books of All Time:

BookAuthority collects and ranks the best books in the world, and it is a great honor to get this kind of recognition. Thank you for all your support!
The book is available for purchase on Amazon.

Wednesday, June 6, 2018

Happy Anniversary AlzAuthors! Alzheimer’s & Brain Awareness Month Book Sale & Giveaway



Republished with permission from AlzAuthors.com
 


It’s our third anniversary and the admins at AlzAuthors are so excited! We have come so far since we first partnered in 2015 to help raise awareness of Alzheimer’s and dementia. Here are the highlights:
  • In 2016, we launched this website and have since featured 150 authors and their books, many written from the trenches, giving an up close and personal glimpse into the lives of Alzheimer’s caregivers and the disease. Upcoming blog posts are scheduled into November!
  • We have gathered an active army of advocates for those living with the dementias who work to break stigmas attached to the diseases via social media, online and in-person events.
  • We have been interviewed on podcasts and written guest posts for several other caregiver forums, including Being Patient, eCare Diary, BlipIQ and Samada.com.
  • In September, a selection of our books and two of our authors will travel to Alaska on board the Alzheimer’s and Dementia-Friendly Cruise & Conference on Holland America. This cruise is designed for caregivers and their family members living with early-stage Alzheimer’s disease. AlzAuthors is sponsoring a Book Circle, and many of our books will be raffled off to attendees.
  • We are currently hard at work creating our first Anthology, which will include posts from the first year of our blog.

Whew! We have been busy! When Marianne, Jean, and Vicki first met to talk about cross-promoting their books and raising awareness of Alzheimer’s and dementia, they had no idea their efforts would have such an impact. With the addition of Kathryn Harrison and Ann Campanella, the ideas and energy are boundless.

To celebrate our achievements we’re hosting a sale and a raffle in conjunction with Alzheimer’s and Brain Awareness Month. Starting today through June 12 you can take advantage of this excellent opportunity to check out some of our books at reduced prices or FREE. We offer a variety of genres, from fiction, children’s, memoir, and non-fiction in digital, paperback/hardback, and audiobooks. Our books are written from a deep place of understanding, experience, knowledge, and love. May you find one – or two, or three! – to help guide you on your own dementia journey. And they make great gifts!

Note: Click on the book covers to visit the book’s Amazon.com page. Please check all prices before purchasing. AlzAuthors is not responsible for ensuring price reductions. All prices are in U.S. dollars. AlzAuthors is an Amazon Affiliate and may receive a small sales commission to assist in maintaining the website.

Don’t forget to enter our RAFFLE, where one lucky winner will win a collection of books from AlzAuthors. To enter, click here NOW!

And now, the books:

Trading Places, Becoming My Mother’s Mother memoir by Sandra Bullock Smith, Kindle FREE through 6/10 then 2.99

Caring for an elderly parent can be extremely challenging. The role reversal involved is emotionally and intellectually demanding, and many caregivers find themselves unprepared to undertake such a difficult task. In Trading Places: Becoming My Mother’s Mother,author Sandra Bullock Smith shares her personal experiences spending ten years caring for her ailing mother. This heartfelt look at the trials and tribulations of that decade offers powerful insight and encouragement for anyone entering into a similar period of life. Smith’s touching stories share the heartbreaking, and sometimes comical, moments she experienced while providing assistance to her aging parent—and how they mirrored similar events from her own childhood. In a very real sense, the two women traded places. Smith found herself uttering phrases she heard all too often as a child, such as, “Don’t give your food to the dog” and, “You’ve had enough sugar today.” Smith began jotting down the things she said, and thus this charming book was born. Filled with respect, compassion, and love, this uplifting and amusing memoir is for anyone involved in elder care or who may face the role in the future.

Somebody Stole My Iron: a Family Memoir of Dementia, by Vicki Tapia, Kindle .99

Navigating the waters of dementia can be frightening, unleashing a myriad of emotions for everyone involved. After Vicki Tapia’s mother was diagnosed with Alzheimer’s disease, followed closely by her father with Parkinson’s disease-related dementia, she struggled to find practical, helpful information to light her way. Somebody Stole My Iron began as a diary to help her cope, but emerged as a road map for others. It offers a glimpse into her family’s life as they rode the waves of dementia, sometimes sailing, other times capsizing. This engaging memoir offers useful informtion from experts within the field of Alzheimer’s research, personal lessons the author learned along the way, and ideas and tips for managing the day-to-day ups and downs of dementia.

Role Reversal How to Take Care of Yourself and Your Aging Parents by Iris Waichler, MSW, LCSW, $10 paperback

Designed to help caregivers understand how to cope with and overcome the overwhelming challenges that arise while caregiving for a loved one—especially an aging parent—Role Reversal is a comprehensive guide to navigating the enormous daily challenges faced by caregivers. In these pages, Waichler blends her personal experience caring for her beloved father with her forty years of expertise as a patient advocate and clinical social worker. The result is a book offering invaluable information on topics ranging from estate planning to grief and anger to building a support network and finding the right level of care for your elderly parent.

Weeds in Nana’s Garden, children’s fiction by Kathryn Harrison,  Hardcover 30% off 

A young girl and her Nana hold a special bond that blooms in the surroundings of Nana’s magical garden. Then one day, the girl finds many weeds in the garden. She soon discovers that her beloved Nana has Alzheimer’s Disease; an illness that affects an adult brain with tangles that get in the way of thoughts, kind of like how weeds get in the way of flowers. As time passes, the weeds grow thicker and her Nana declines, but the girl accepts the difficult changes with love, and learns to take-over as the magical garden’s caregiver. Extending from the experience of caring for her mother, artist Kathryn Harrison has created this poignant story with rich illustrations to candidly explore dementia diseases, while demonstrating the power of love. It is a journey that will cultivate understanding and touch your heart. After the story, a useful Question and Answer section is included. 20% of the proceeds from the purchase of this book will be donated to the Alzheimer Society of Canada. The Alzheimer Society is Canada’s leading health charity for people living with Alzheimer’s disease and other dementias.

Alzheimer’s Daughter, memoir by Jean Lee, Kindle .99

What would you do if both parents were diagnosed with Alzheimer’s? At the time of their diagnosis, Ed Church struggles to his feet, yelling, “How dare you use the A. word with me,” while Ibby wags her finger at the doctor scolding, “Shame on you.” They protect each other, Ibby by asserting, “We’re not leaving our home,” and Ed reassuring, “We’re just fine.” About his driving Ed defends, “I’m an excellent driver, I’ve never had an accident.” When their daughter, Rosie, finds dings in Ed’s car, he dismisses, “Someone must have bumped into me.” After Rosie moves them to assisted living, convinced they are on a second honeymoon, they break the news, “We’ve decided not to have more children.” In the late stages, they politely shake Rosie’s hand, inquiring, “Now, who are you?” In Alzheimer’s Daughter readers journey with Rosie Church from her first suspicions that something is awry to nearly a decade later as she is honored to hold Ed and Ibby’s hands when they draw their final breaths.

Blue Hydrangeas, an Alzheimer’s love story, fiction by Marianne Sciucco, Kindle .99, paperback 9.99

What if the person who knew you best and loved you most forgot your face, and couldn’t remember your name? A care facility is everyone’s solution for what to do about Sara, but her husband, Jack, can’t bear to live without her. He is committed to saving his marriage, his wife, and their life together from the devastation of Alzheimer’s disease. He and Sara retired years ago to the house of their dreams, and operated it as a Cape Cod bed and breakfast named Blue Hydrangeas. Jack has made an impossible promise: He and Sara will stay together in their beautiful home no matter what the disease brings. However, after nine years of selfless caregiving, complicated by her progressing Alzheimer’s and his own failing heart, he finally admits he can no longer care for her at home. With reluctance, he arranges to admit her to an assisted living facility. But, on the day of admission, Sara is having one of her few good days, and he is unable to follow through. Instead, he takes them on an impulsive journey to confront their past and reclaim their future. In the end, he realizes that staying together at any cost is what truly matters.

Requiem for the Status Quo, fiction by Irene Frances Olson, Kindle 1.99, paperback 8.97 (visit Black Rose Writing; use discount code ALZAUTHORS)

Family caregivers are oftentimes ruthlessly challenged by uninvolved family members who are quick to condemn, but reticent to offer assistance. Such is the case for Colleen Strand, a widow who recently found her own footing who takes on the task of caring for her father, Patrick Quinn, recently diagnosed with Alzheimer’s disease. Her older brother, Jonathan, criticizes Colleen at every turn and verbally abuses the father when he has the gall to exhibit symptoms of his disease. In short, Jonathan travels down the road of denial, leaving Colleen to deal with all matters regarding their father’s care. Connected tenuously to a father who barely remembers her and a brother who has become an enigma, Colleen faces the moving target that is Alzheimer’s disease, determined to clothe her father with the dignity he deserves, while capturing the far too fleeting moments of time with him.

The Reluctant Caregiver: Missives from the Caregiving Minefields, memoir by Joy Johnston, Kindle .99, paperback 8.95

One moment, digital journalist Joy Johnston is a cynical workaholic with an underwater mortgage. The next moment, she faces the responsibility of caring for her eccentric mother who’s battling colon cancer, just six months after her father’s death from Alzheimer’s. As an only child, she has no choice but to slap on the latex gloves, and get to know more about her mother — and herself — than she ever imagined possible. The road from reluctance to resilience is bumpy and splattered with bodily fluids, but it also offers unforgettable lessons. Who knew you could learn how to change a colostomy bag on YouTube, or that hospice nurses like telling dirty jokes? Peppered with snarky humor, vivid observations, and poignant honesty, this essay collection will resonate with anyone drafted into a family health crisis. 

The Dementia Handbook: How to Provide Dementia Care at Home, by Judy Cornish, Kindle 2.99

Providing dementia care is profoundly stressful for families and caregivers. People with dementia or Alzheimer’s experience emotional distress, which leads to behavioral complications and the need for institutional care. However, if families and caregivers are able to identify the emotional needs caused by dementia and understand which skills are lost and which remain, they can lower the behavioral complications and their own stress. As the founder of the Dementia & Alzheimer’s Wellbeing Network® (DAWN), Judy Cornish approaches dementia care with clear and empathetic methods that not only improve the lives of the individuals with dementia but also of those caring for them. Dementia and Alzheimer’s are very personal and individual experiences—they vary from person to person. However, Cornish has identified a pattern in the abilities and disabilities of people living with dementia. Based on her findings, Cornish was able to develop methods for caregivers to ease emotional distress, which can quickly and safely resolve behavioral complications. Though people with dementia lose a sense of self, they are still the same person you always loved. Judy Cornish understands this. The Dementia Handbook: How to Provide Dementia Care at Home is the supportive guide you’ve been looking for as you walk alongside your loved one on this difficult—but potentially rewarding—new path.


Meet Me Where I Am, an Alzheimer’s Care Guide, by Mary Ann Drummond, Kindle .99

Caring for someone with Alzheimer’s disease requires an abundance of knowledge, patience and love. There are many obstacles along the way to discourage and overwhelm even the most well rounded individuals. “Meet Me Where I Am” is an essential resource for Alzheimer’s caregivers, designed to teach, enlighten and comfort while preparing for the journey ahead. Providing real life scenarios commonly encountered, along with solutions to some of the more difficult tasks, makes this book a “must read” for anyone seeking a better understanding of how to meet the needs of those suffering with Alzheimer’s disease.

My Mom My Hero: Alzheimer’s – A Mother and Daughter’s Bittersweet Journey, by Lisa Hirsch, Kindle, FREE June 6-10, then 2.99

When Lisa Hirsch found out her mother, Ruth, had been diagnosed with Alzheimer’s disease, her love, appreciation, and caring for her mother was transformed. To Lisa’s surprise, it has brought her and Ruth closer together than they’ve ever been. My Mom My Hero tells the story of this mother-daughter relationship through a series of entries from Lisa’s internationally popular blog. Ultimately this is an uplifting and inspirational book for anyone who’s going through the difficult and often lonely ordeal of caring for a loved one who suffers from this devastating illness.

Motherhood: Lost and Found, memoir by Ann Campanella, Kindle, .99. Sale price begins at 12 noon, EST, on 6/6/18. 

 Motherhood: Lost and Found takes the reader on a journey where Alzheimer’s disease and infertility intersect. At age 33, author and poet Ann Campanella returns to her home state of North Carolina ready to build a horse farm and start a family. Ann’s foundation is shaken when she experiences multiple miscarriages at the same time her mother spirals into Alzheimer’s. The author’s devotion to her family and her horse Crimson sustain her as her mother’s illness progresses and her own window of potential motherhood begins to close. The voice in Ann’s memoir has been called constant and abiding, her imagery indelible. Her graceful, exacting language rises above the grief of infertility and the struggle to care for aging parents, connecting the reader ultimately to the heartbeat and resilience of the human experience. This memoir was honored by Next Generation Independent Book Awards, Readers’ Favorite and Voices for Horses, an International Equestrian Book Award.

Save the Bones, memoir by Shannon O’Donnell, Kindle, 2.99, paperback 8.00

Second edition. Includes new material, the final chapter in the story of a mother and a daughter and Alzheimer’s. Maddening. Crazy-making. Frustrating. The dance that is Alzheimer’s is never quite mastered. The music changes often and the steps are irregular. This way? That way? Nothing is ever straightforward in the telling. This mother and daughter navigate the capricious ways of Alzheimer’s and discover new things along the way, including laughter that surprises and bonds them to shared history and memory.

Sometimes They Forget: Finding Hope in the Alzheimer’s Journey   by RJ Thesman,   Kindle 2.99

Caregivers of Alzheimer’s patients grieve through the Long Good-bye while trying to meet the needs of their loved ones. These caregivers need a nugget of hope – to know they are not alone. Sharing the authenticity of the caregivers’ challenges, Sometimes They Forget presents essays and meditations describing the caregiving battle within Alzheimer’s Disease. RJ Thesman writes from the viewpoint of a long-distance caregiver whose mother is disappearing within the shadows of the Long Goodbye. With this series of essays and meditations, Thesman presents tips for caregivers, personal family memories and the sacred space Alzheimer’s cannot touch. For a better understanding of the caregiving journey, explore these empathic stories about loved ones who sometimes forget.

Fractured Memories: Because Demented People Need Love, Too by Emily Page, Kindle 2.99, paperback 20.76 with coupon code AlzAuthors2018 via author’s website

In 2009, Emily Page’s father was diagnosed at the age of 65 with frontotemporal dementia, a form of dementia that strikes earlier and progresses more quickly than Alzheimer’s, and for which there is no treatment to slow the progression of the disease. Being so young, Page hadn’t had much experience with dementia, but she began documenting, in writing and art, her family’s heartbreaking and hilarious experiences. As a professional artist, she had often turned to art as a self-prescribed therapy to help deal with life’s trials. This battle was no different. She utilized the elephant as a symbol for dementia, and incorporated sheet music into the paintings because her dad had been a jazz musician. Eventually, Page created 40 paintings that are included in the book. She also began blogging about the range of issues that arose daily as the disease progressed, documenting everything from her own fear of getting dementia, to her dad’s transition to diapers (and the various places he opted to drop his drawers and just “go”), to combatting his compulsions like the need to “clean” the cars with steel wool, to an exploration of how he might have gotten the disease, to finding the right dementia care facility, to the best ways to make him giggle. Page approached the disease from the fresh viewpoint of a younger caregiver. As her blog following grew, so did the suggestions from readers that she turn the blog into a book. Page doesn’t shy away from the ugly, raw emotion of life with dementia, but she also looks for the laughter where it can be found. Rest assured, you will love her father as much as she does when the book is done, and perhaps gain some insight about how to cope with your own loved one’s dementia or how to support a caregiver.

Bringing Mom Home: How Two Sisters Moved Their Mother Out of Assisted Living to Care For Her Under One Amazingly Large Roof, by Susan Soesbe, Kindle 1.99, paperback 9.99

Sisters Claire and Susan have been noticing their independent, introverted mother is sort of… off. Discreet investigation reveals the appalling truth: Mom can’t find her way home, pay her bills or even get to the toilet anymore. The move to an assisted living facility only further highlights the many aspects of her life that have quietly fallen through the cracks. Assisted living doesn’t render enough assistance for people with advanced dementia, and Mom has never fit in anyway. There’s only one thing left to do: bring her home. But how can the sisters pull it off? The practical aspects of physical care turn out to be less difficult than the emotional challenges to love and honor. The author brings her Christian faith to bear on such questions as, How can I love this person who bears no resemblance to the woman who raised me? And, Do I really just want Mom to hurry up and die? Bringing Mom Home is a wry, bittersweet, and occasionally humorous account of one woman’s determination to love her mother before it’s too late.

Lewy, Mom, and Me, memoir by Peggy Bushy, Kindle .99, paperback 9.99  

In her seventies, Peggy Bushy’s mother, Francesca, started telling unbelievable stories. She claimed that people were invading her home and trying to kill her. She also became anxious and reclusive. For several discouraging years, Bushy searched in vain for a reason for her mother’s behavior. Finally, Francesca was diagnosed with Lewy body dementia. Although it’s the third-most-common cause of dementia, Bushy was unable to find much information on the disease, and the medical community was frustratingly unhelpful. Lewy, Mom, and Me is the book that Bushy wished had been available when her mother was first diagnosed. It details her personal journey of discovery, with all its challenges and revelations, and is written in a compassionate, empathetic style that will comfort any reader dealing with a parent’s decline. Bushy explains how she learned to accept the changes in her mother and to support Francesca emotionally as she grappled with her frightening illness. She also describes what was involved in caring for her mother first at home, then in long-term care, and finally in hospice. Part memoir and part survival guide, this compelling testimony offers support and information for family caregivers of aging parents.

No Sad Songs, Young Adult Fiction by Frank Morelli, Kindle 2.99, paperback 10.39 via publisher’s website

Following a family tragedy, 18-year-old Gabe LoScuda suddenly finds himself thrust into the role of caregiver for his ailing grandfather. Between the shopping trips and the doctor visits with Grandpa, Gabe and his friend John try to salvage their senior year, meet girls, and make the varsity baseball team. It doesn’t take long for Gabe to realize that going to school and looking after a grandfather with Alzheimer’s is more work than he ever imagined. And when long-lost Uncle Nick appears on the scene, Gabe soon finds that living with Nick and Grandpa is like babysitting two grown men. Aside from John, the only person who truly understands Gabe is Sofia, a punk-rocking rebel he meets at the veteran’s hospital. When these three unlikely friends are faced with a serious dilemma, will they do what it takes to save Grandpa? If there’s a chance of preserving the final shreds of Grandpa’s dignity, Gabe may have to make the most gut-wrenching decision of his life—and there’s no way out.

To Helen with Love: A Memoir of a Daughter’s Caregiving Journey, by Linda Jenkins, Kindle 2.99, paperback 12.00

It was a role she never expected to fill, but Linda Jenkins was soon thrust into a life of unpredictable days, lonely nights, and searing grief. For eighteen years she watches her mother give more and more of herself to Alzheimer’s disease from the seat of primary caregiver. Nothing could prepare her for what this new path would entail: navigating insurance issues, the healthcare system, financial concerns, hospice, and a panel of doctors, nurses, and caregivers. To Helen with Love is written with humility, faith, and love in the face of a dark and ravaging disease. She candidly addresses her fears, her doubts, and her grief as time ushers her through one obstacle after another. A practical and helpful memoir, the book is filled with resources, advice, encouragement, and hope; she finds humor and joy where it shines brightly through the fog and captures it all in her recollections of her mother’s last years. With insight on advocacy, best practice, and the emotional spectrum common among caregivers, Linda Jenkins offers information, support, and inspiration in her mother’s memory. Her faith was challenged in ways she could never have dreamed of, but with the love of God and her mother, she rose to the challenge and learned about herself, her family, and her faith.

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