It doesn’t matter where we live, what religion we are, how
much (or how little) we have, what language we speak or the color of our
skin. Throughout the world, Alzheimer’s
is the same monster and we are all just trying to figure out how to deal with
it.
You couldn’t write a script with a more compelling storyline
of love, laughter, sorrow and loss than what’s being lived right now by Alzheimer’s
families around the globe.
This is our family’s story, simple and real.
My name is Jane and Joe, my husband of 35 years, was
diagnosed with Dementia/Alzheimer’s about two and a half years ago.
I wouldn’t call myself a writer. In fact, I’m dyslexic,
which makes writing an interesting challenge.
My career was in business management.
That fed my purse, but to feed my soul I was an abstract artist,
designer, and an actor and director in Community Theater.
I can find humor in most things. To me life is a comedy,
better set to music than tears. But I also know that sometimes life can be a
dark comedy, filled with pain and loss.
Someone said to me once, “Don’t you ever take anything seriously?” The
answer, “Not if I can help it.”
I decided to personify my husband’s disease and call it “Al”
thinking of him as our “uninvited guest”, the hanger-on, the guy who doesn’t know
when to go home. So Al is a metaphor, an
image and symbol of what we must live with and struggle through every day.
I wasn’t sure writing a blog was the right thing to do. I
worried it might somehow become an embarrassment or humiliation for Joe and for
our family. I didn’t know how people would react to so much openness about
our struggles; would they think I was trying to garner sympathy or indulging in
our troubles? Would writing about my life provide psychological relief,
or would it make things worse?
I have always been able to see the
humor in life’s experiences (good or bad) and laugh about them. But Alzheimer’s
is serious business. Would I offend readers by making light of all the
craziness that comes with it?
I decided I would have to focus on
my own experiences with this disease, to speak solely from the point of view of
a caregiver. I would never be able to feel what Joe was feeling, much less
capture it in print.
I’ve often questioned what I write,
fearing I might be in denial or becoming paranoid. Are things really the
way I think they are? (This disease can often play tricks on the caregiver.)
With that said, here I am, with 44
posts hanging out there in the vastness of cyberspace. So I ask myself,
“Would I do it again?”
The answer is simply, “Yes.”
This little blog is now read in
over 25 countries. It truly is “Al” over
the world. The responses from readers
have been heart-warming, serving as a lifeline for me.
Jane
Gayer currently lives in Arizona with her husband Joe, but is an
Oregonian at heart, having lived in the Northwest most of her life. The couple has four adult children and eight
grandchildren spread around the country.
Jane is retired from a successful career in high technology having
managed a number of business entities.
Throughout her life, she has maintained involvement with the arts as an
abstract artist, designer and actor and director in community theatre. In 2013 she received a nomination for Best
Dramatic Actress from Southern California’s Desert Theater League. She
currently is a caregiver for her husband who was diagnosed with
Dementia/Alzheimer’s in 2013.
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