Alzheimer's Daughter

The Story

Alzheimer’s Daughter introduces the reader to my healthy parents, Ed and Ibby, years before their diagnosis, then recounts painful details as our roles reversed and I became my parents’ parent.

Their disease started as translucent, confused thoughts and ended in a locked memory care unit after a near decade of descent into the opaque world of Alzheimer's.

I began writing Alzheimer’s Daughter one week after my mother's death––when I was stunned, realizing Dad had no memory of her or their 66-year marriage.

I write to pay tribute to the undying spirit at Ed and Ibby's core, and with the hope that the story of their parallel decline might be helpful to others.

Wednesday, March 23, 2022

Neurologist, Dr. Daniel Gibbs, Reveals His Personal Story in A Tattoo on my Brain


It's been so interesting, connecting with Dr. Daniel Gibbs about his ground-breaking new book. As a neurologist, he gives powerful insights into his progression and guides us in our approach to caring for our loved ones in, A Tattoo on My Brain.

Dr. Gibbs writes:

I am a 70-year-old retired neurologist, and I have early-stage Alzheimer’s disease. In retrospect, my first symptom of Alzheimer’s occurred when I was 57 and realized that my sense of smell was not as sharp as it once had been. I chalked this up to normal aging, but about a year later I started to have strange, illusory odors, like the smell of baking bread mixed with perfume. They would come out of nowhere and last a few minutes to an hour or so. These are called phantosmias, and they are sometimes associated with neurodegenerative disorders. At the time I was not aware of the association of loss of smell with Alzheimer’s, but it turns out that virtually all people with the disease have at least some impairment of olfaction when tested, but most are not aware of it. I still wasn’t worried until while doing genealogical research in 2012 I unexpectedly discovered that I have two copies of the APOE-4 allele putting me at very high risk for dementia. Alzheimer’s disease had not been on my radar screen because both my parents had died in midlife from cancer.

Read the entire post on AlzAuthors:

Thursday, March 3, 2022

Meet Mary Crescenzo, author of "The Planet Alzheimer's Guide: 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own"


My life has been enriched by encountering the dynamic Mary Crescenzo, whose list of credentials include master teaching artist, public speaker, playwright, as well as the author of the new book The Planet Alzheimer's Guide: 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own

If you are looking for ways to value your loved one with Alzheimer's, while forging a deeper connection with them, I encourage you to purchase Mary's book and try out some of her wonderful ideas.


Mary writes:

I wrote this how-to guide for caregivers, personal and professional, to offer step-by-step tips and techniques so caregivers, family and friends of those with this disorder can discover how interaction and communication, through painting, music, movement, storytelling, poetry and photography, can enrich the lives of loved ones as well as their own, even though they or those they care for may have no arts background.

Read the entire post on AlzAuthors.