Alzheimer’s Daughter introduces the reader to my healthy parents, Ed and Ibby, years before their diagnosis, then recounts painful details as our roles reversed and I became my parents’ parent.
Their disease started as translucent, confused thoughts and ended in a locked memory care unit after a near decade of descent into the opaque world of Alzheimer's.
I began writing Alzheimer’s Daughter one week after my mother's death––when I was stunned, realizing Dad had no memory of her or their 66-year marriage.
I write to pay tribute to the undying spirit at Ed and Ibby's core, and with the hope that the story of their parallel decline might be helpful to others.
Wednesday, December 26, 2018
Wednesday, December 19, 2018
Wednesday, December 12, 2018
Wednesday, December 5, 2018
Wednesday, November 21, 2018
Saturday, November 17, 2018
by Irene Frances Olson, AlzAuthors Global Outreach Coordinator
The quickest method to connect with someone is the virtual, social media connection with which we are all familiar. But unless a person crosses the precipice from virtual to real, there is no way to truly understand the benefit of in-person relationships.
|AlzAuthors In-Person Connections. Upper Left: Lisa B. Capp, Jean Lee, Vicki Tapia, Irene Frances Olson; Upper Right: Florrie Munat & Ann Campanella; Lower Right: Bobbi Carducci & Marianne Sciucco; Lower Left: Kathryn Harrison & Jean Lee|
That was the case for the AlzAuthors Management Team when all six of us convened at the 2018 National Caregiving Conference in Chicago. The team was generously gifted with the opportunity to gather from the corners of the world from which we hail: the states of Washington, Montana, Ohio, North Carolina, and New York, and the Canadian province of Ontario. Meeting for the first time was a highly anticipated emotional event that proved beyond beneficial to me. You think you know someone after spending months, or even years, emailing, texting, and video-calling, but what I discovered is you can’t truly know a person until extended real – not virtual – facetime occurs.
I met with as many conference attendees as I could and having done so, I came away concluding that community is everything. Like-minded individuals – at least 250 of them – gathered together for several days to feed the spirit, nourish the soul, and further the mission of being a support to the weary caregiver.
Regardless of which disease renders a person in need of care – Alzheimer’s, cancer, ALS, and the like – caregiver heroes need as much support as can be given. A powerful community goes a long way toward lessening a person’s burden, and as AlzAuthors has been known to say:
|Winner of the NCC18 AlzAuthors 6-Pack Giveaway!|
Wednesday, November 14, 2018
Wednesday, October 31, 2018
By Tracie Bevers
As we journeyed through Alzheimer’s with Mom and Dad, I regularly took notes, sent emails to our kids, took pictures…that sort of thing. Somewhere along the way, I decided that one day I could write a book with all the notes I was taking. I had become passionate about sharing the story and encouraging others, and I wanted to share our journey with people who needed to hear about it.
My reasons for telling the story are:
To help others beginning the journey – to share information that may be helpful to them, even if it is hard to tell…and hard to hear.
To make it clear to those who don’t understand what Alz is…it is a cruel disease of the brain affecting 5.7 million Americans. According to the Alzheimer’s Association, that number could rise to 14 million by 2050.
To share a sweet story of two people who loved each other to the end. Their journey made it possible for others to witness a true, one-of-a kind love story and raised the bar for many.
It’s not an easy story to tell, but the truth is – Alzheimer’s is not easy. If I didn’t tell the real story, even the parts that make us uncomfortable, then I’m not sure any of my three goals would be accomplished. I have struggled…hoping others don’t think I shared too many intimate details, but mostly praying that Mom and Dad would approve. Now I know that if they could hear the stories about how their journey is helping others, they would be pleased. Following are excerpts from some comments received:
“Sharing the most intimate of details, the book gently wraps its hands around your heart and guides you down a path of love and loss that will provide you perspective and lessons you can apply while navigating the dark and turbulent waters of Alzheimer’s. Bevers allows us into her compassionate and emotional world so we may emerge strengthened with greater understanding.”
“Wonderfully written, I found it both inspiring and frightening since I now realize that our own experience is only at the halfway point in the book. A lot lies ahead but this helped me prepare for it. Thank you for sharing such a personal journey.”
“I could feel each beautiful moment and the emotion of every heart-wrenching decision. What a truly remarkable treasure this will be for many facing uncertain times.”
“I am beginning the journey you just left and reading this book has changed how I approach it. I have a better understanding of what my mom is going through and I will hopefully be a better son to her because of it.”
The unexpected gift that came from writing the book was that it was a healing experience for me…it was the right thing to do for Mom and Dad, for others, and for me.
Purchase Dancing Around the Chaos
Tracie Bevers lives in the Houston area and is known as “Honey” to her six grandchildren. She loves writing, reading, cooking (AND eating out!), traveling (AND spending time at home!)…but mostly she loves spending time with family and friends. She has known her husband since she was 14 years old, and they have been happily married for almost 39 years.
Tracie spent well over a decade journeying through the world of Alzheimer’s after her parents were diagnosed. She learned a lot…mostly about real, true love…a precious gift that she now realizes she may have missed had she not been on the Alz journey with them. Along the way, she became passionate about sharing information with others just beginning their own long journey to goodbye.
Connect with Tracie Bevers