Alzheimer's Daughter

The Story

Alzheimer’s Daughter introduces the reader to my healthy parents, Ed and Ibby, years before their diagnosis, then recounts painful details as our roles reversed and I became my parents’ parent.


Their disease started as translucent, confused thoughts and ended in a locked memory care unit after a near decade of descent into the opaque world of Alzheimer's.

I began writing Alzheimer’s Daughter one week after my mother's death––when I was stunned, realizing Dad had no memory of her or their 66-year marriage.

I write to pay tribute to the undying spirit at Ed and Ibby's core, and with the hope that the story of their parallel decline might be helpful to others.

Tuesday, June 13, 2023

Cheryl Crofoot Knapp Reveals a Journey of Caring for Both Parents With Alzheimer’s Disease in Her Book “Undefeated Innocence.”

 We’ve all had life-changing experiences. My first, and most impactful, happened when I was too young to have memory.


In 1956, I was diagnosed with spinal meningitis when I was two and a half years old. We lived in small-town Ohio where the undertaker doubled as the ambulance driver. I was rushed to the nearest large children’s hospital and put in isolation. Two other children were also hospitalized with the same infection. They died within days. As a last-ditch effort, doctors drilled three burr holes in my tiny skull to relieve pressure. (I can still feel the dents in my head, although now covered with bone.) Miraculously, I survived. I spent six weeks in the hospital gaining strength and learning to walk again. Doctors told my mom and dad I’d never be normal.


But, my mother was determined I would be absolutely normal. Although I have few memories of that time, as I grew, I recall we did flash cards every day without fail. She pumped me full of good garden-grown food. One vivid and recurring memory is being absolutely terrified to go back for regular checkups with the doctor, so my mom would bake banana bread with me and have me walk proudly into the office to deliver the bread to the doctor.


My illness fostered a strong faith within my parents. They begged God for my life and in return they grew a strong faith in me. 

Every day of my life was viewed through an aura of…. 

Without faith, you might not have had an extra day beyond two and a half years. 

God spared your life.  

Therefore, for every day you live beyond that you must: 

-be thankful to God,

- pay back

- and do good for others. 


My parents’ dual diagnosis with Alzheimer’s and simultaneous decline rates right up there as my second life-changing experience. Because my parents saved my life and loved and cared for me, it became critical for me to make the best decisions for them through their disease process. I’m so thankful I found the comfort of AlzAuthors and the sisterhood and brotherhood we share on this journey along with other care partners.


At AlzAuthors we feature books written from all faiths worldwide, as well as no faith at all. All well-written personal experiences with Alzheimer’s and dementia are honored, lifted, and elevated for the good of caregivers, through our platform.


With that said, I’d like to share a faith-based, inspirational book that touched my heart recently. I’m honored to introduce you to Cheryl Crofoot Knapp and her memoir of taking care of both parents, Undefeated Innocence.


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Our Most Recent Author

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Cheryl Crofoot Knapp shares her personal experience

with Alzheimer's disease in

Undefeated Innocence.


Cheryl writes:

I barely understood Alzheimer’s the first time it staged assault on our family. It was an unwanted guest stealing my dad. My mom tried to handle everything on her own. She hid a psychiatric evaluation that revealed my dad failed the clock test, had a functional IQ of under 90, and needed immediate full-time care. Mom thought she could fix him. She couldn’t help my dad, her depression returned, and I made the difficult decision to place him immediately in a care facility.

...Two years later, the unwanted guest made a repeat performance with my mom in the lead role. She was still mobile and enjoyed being sociable, but she needed to move to a residential community that could provide care as the disease progressed. She loved to play cards (until she couldn’t remember how to play the games) and chat with her new girlfriends. A year later, my husband and I moved 800 miles from Minnesota to Arkansas to help her and become her legal guardians. 



Read Cheryl's Post


Wednesday, May 31, 2023

Paula de Ronde’s Novel ‘My Bert Has Alzheimer’s’ Reveals Her Gripping Journey of Caregiving for Her Beloved Spouse with Alzheimer’s

 

Most Recent Featured AlzAuthor

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Paula de Ronde, a retired librarian from Ontario, Canada, was thrown into a spouse caregiver role for her beloved husband, Bert. As a result of her powerful journey she wrote My Bert Has Alzheimer's. We guarantee your heart will be touched as you learn about their intimate journey.


Paula shares: I was uninformed but not for long as my life, career and advocacy interests all seemed to converge with the diagnosis. Writing became my therapy and a major self-care issue as I stumbled through the highs and lows of caring for my beloved husband who was slowly losing his personhood under the onslaught of the dreaded disease.

I recorded as I learnt and needed to share. I wanted to pass on all that I was experiencing to my new community of fellow caregivers, my companions on this unfamiliar road.

I rebelled at the stigma associated with Dementia acknowledging that this was the real ignorance that manifested itself in such negativity. I wanted to scream: “It’s a disease! He’s not crazy!”


Read more here


Retweet for Paula


Wednesday, April 12, 2023

Meet Susan Elkin, Author of the Spouse Caregiver Memoir, The Alzheimer's Diaries

If you are a spouse/caregiver, you'll certainly want to add this book to your caregiving collection by Susan Elkin. She is a British former teacher of secondary school English from South London who has been writing professionally since 1990: journalism for newspapers, magazines and websites and over 50 books. So when her husband, Nick was diagnosed with Alzheimer’s disease in 2017, blogging about it came naturally. Those blogs, which ran until Nick’s death in 2019, are now compiled into her new book, The Alzheimer’s Diaries.


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Susan writes:

Could, or should, I write about this “journey” that Ms Alzheimer’s had forced on us? Well, obviously, not without Nick’s permission. He was a quiet, quite private man so I expected him to give me an unequivocal no. To my amazement he said: “Yes, why not? When we meet people out it’s going to be much easier for me if everyone knows because they’ll make allowances – and maybe going public will help others.” 



Read Susan's post


Wednesday, February 8, 2023

Amazing Children's Book by Dr. Julissa Cruz from the Netherlands written in English, Dutch and Spanish

 

AlzAuthors Most Recent Author

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Julissa Cruz Gomez is a Dominican doctor who lives and works in the Netherlands. In her vividly colorful book she takes children on a journey through the brain's pathways.


Julissa writes:

In this story, my niece, along with her cousin, a cat and a dog, undertake a wonderful journey to their grandmother's brain to understand what is happening there. There they meet Mr. Hippocampus and see the neurons up close. It is a beautiful story where children learn that love, patience and empathy is what their grandparents with cognitive problems need the most. 


Read more about Julissa here!


Thursday, October 27, 2022

Enjoy This Unique Illustrated Caregiver Guide by Gina Awad

Gina Awad, from Exeter, UK, along with her illustrator, Tony Husband, has written a unique, illustrated guide to dementia care, focusing on six families of diverse backgrounds through her new book, United Caring For Our Loved Ones.


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Gina says:

On deeper reflection I recalled my early childhood experiences visiting care homes with my grandmother who partook in creative arts with the residents. As an 8 year old and over 4 decades earlier I remembered not the residents engaging with the arts but those that weren’t. Being a little girl my emotions were stirred and I felt a sense of isolation, fear and vulnerability coming from the residents who I now know were living with advanced dementia. I believe these strong emotions and my naturally empathic nature connected all those years ago with the people, and my study ignited them. This was the catalyst in my mission and sits at the heart of what I do and why I do it.


Click here to read Gina's essay on AlzAuthors.


Monday, September 12, 2022

Scott Rose

Introducing Scott M. Rose and His Beautiful Memoir, 

We Danced; Our Story Of Love and Dementia

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Have you seen this gorgeous book? I was captivated by the beauty of the cover. Scott Rose pours his spouse caregiver story out in We Danced: Our Story of Love and Dementia.


Scott writes:

I watched all the things that we built start to fade as things do, but saw our love remain – the most important aspect of our life together. Despite communication barriers and behavioral crashes, we sustained that love till, and through, her last breath, with me weeping at her bedside.


Read Scott's entire post on AlzAuthors.com:

https://alzauthors.com/2022/05/24/scott-rose-we-danced-love-and-alzheimers/






Wednesday, June 8, 2022

Introducing Lisa Graff and her book for teens, Up In the Sky So Blue

imageI recently posted this meme to social media with this wording: "Visiting an elderly loved one may be uncomfortable, but it brings them so much momentary joy. Do what is hard. Visit anyway."


I received these comments from our authors:

"Visiting loved ones is such an act of love. Even if they don't remember the visit, they will remember how loved you made them feel." and "Just do it!"


We've all been there. We've dreaded the visit to elderly parents. But this is why we do what we do at AlzAuthors. We make the uncomfortable more comfortable. We support those currently on the journey to let them know they are not alone.


Thank you for your support of AlzAuthors now and always as we mark our 7th anniversary. Who ever would have thought we'd still be working on this passion project. We fill a need in so many...a thirst for knowledge and a hand to hold through the darkness of a caregiving journey.

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Introducing Lisa Graff

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Don't you love the cover of this book? It evokes so many childhood memories but reveals neither happiness nor sadness. You have to read the book to learn the story of 5th grader, Marissa, and her Grammy.


Lisa writes:

Knowing how painful this was for my mother, what if a child had to deal with an elderly parent or grandparent who was experiencing memory loss? Who would help? If she had no other family, would a stranger come to her rescue?

Up in the Sky So Blue became a children’s novel (and an adult novel) about Alzheimer’s, friendships and love. My descriptions of a fantasy world serve as a reminder that everyone needs self-care and deserves to enjoy life.


Read the rest of Lisa's post:

https://alzauthors.com/2022/06/07/lisa-graff-up-in-the-sky-so-blue/


Retweet our announcement of Lisa's post:

https://twitter.com/AlzAuthors/status/1534253550578110465